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Making a Difference

Making a Difference

Sixteen groups collaborated with the Urology Care Foundation at AUA2014, the largest gathering of urologists in the world, to highlight how patient advocacy groups are making a difference in patients' lives.

Association For Pelvic Organ Prolapse Support

APOPS increases awareness of pelvic organ prolapse and provides support and guidance to women navigating the physical, emotional, social, and sexual impact of POP.
262-642-4338

Association Of Peyronie's Disease Advocates

APDA advances the education and awareness of Peyronie's Disease (PD) to patients, partners, and physicians. The better a man with PD understands how to deal with its effects, the better he can move forward with his condition and lead a fulfilling life.

Bladder Cancer Advocacy Network

Each year, the Bladder Cancer Advocacy Network provides thousands of patients, caregivers and the medical community with the educational resources and support services they need to navigate their bladder cancer journey.
888-901-BCAN

Caregiver Action Network

The Caregiver Action Network works to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN provides education, peer support, and resources to family caregivers across the country free of charge.
202-772-5050

Franktalk.org

FrankTalk.org is an online community for men with ED. Its mission is to educate men about erectile dysfunction and its treatments, and also about reproductive health in general.

Interstitial Cystitis Association

The Interstitial Cystitis Association advocates for interstitial cystitis research, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who suffer with constant urinary urgency and frequency and extreme bladder pain called IC.
703-442-2070

Kidney Cancer Association

The Kidney Cancer Association is dedicated to ending death and suffering from renal cancers, with members in more than 100 countries. They fund, promote, and collaborate on research projects. They educate families and physicians, and serve as an advocate on behalf of patients.
800-850-9132

Men's Health Network

Men's Health Network reaches men, boys, and their families where they live, work, play, and pray with health prevention messages and tools, screening programs, educational materials, advocacy opportunities, and patient navigation.
202-543-6461

National Alliance Of State Prostate Cancer Coalitions

The National Alliance of State Prostate Cancer Coalitions is an umbrella organization for state prostate cancer coalitions, state prostate cancer task forces or state prostate cancer foundations. They serve as a clearinghouse for programs and best practices that have worked in various states by and through their prostate cancer coalitions. All of the participating state prostate cancer coalitions derive benefit by networking and coming together once a year at the NASPCC annual meeting.
877-627-7228

National Association For Continence

National Association For Continence is dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders. NAFC's purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence.
1-800-BLADDER

Prostate Conditions Education Council

PCEC has provided early detection for prostate disease and other men's health conditions to over 5 million men. As a national organization, PCEC is dedicated to saving lives through awareness and the education of men, the women in their lives, as well as the medical community about prostate cancer prevalence, the importance of early detection, biomarkers, available treatment option and other men's health conditions.
866-477-6788

Prostate Health Education Network

Black men in the United States have the nation's highest prostate cancer incidence and mortality rates. The Prostate Health Education Network's mission is to eliminate the African American prostate cancer disparity. PHEN's mission also includes advocacy efforts to increase the overall support and resources to wage a war on prostate cancer that will eventually lead to a cure for the disease for the benefit of all men.
617-481-4020

The Simon Foundation For Continence

The mission of the Simon Foundation is to bring the topic of incontinence out into the open, remove the stigma surrounding incontinence, and provide help and hope to people with incontinence, their families and the health professionals who provide their care.
1-800-23Simon

United Spinal Association

United Spinal Association's mission is to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D). They believe no person should be excluded from opportunity on the basis of their disability. Their goal is to provide people living with SCI/D programs and services that maximize their independence and enable them to remain active in their communities.
800-404-2898

Us Too

Us TOO International Prostate Cancer Education & Support Network is a grassroots prostate cancer education and support network of 325 support group chapters worldwide, providing men and their families with free information, materials and peer-to-peer support so they can make informed choices on detection, treatment options and coping with ongoing survivorship.
800-80-Us-TOO

ZERO

ZERO - The End of Prostate Cancer leads the fight to end prostate cancer by advancing research, encouraging action, and providing education and support to men and their families. Their premier programs include the ZERO Prostate Cancer Challenge, the largest men's health event series in America.
888-245-9455

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