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Frequently Asked Questions

Will my child be able to have children as an adult?

Girls with congenital adrenal hyperplasia can get pregnant after the hormonal treatment. Babies with other conditions must be cared for on a case-by-case basis.

  • Babies with ovotesticular DSD with a normal ovary can be fertile.
  • Babies with testicular dysgenesis, may have had their gonads removed. This is done to prevent tumors. If a well-developed uterus is in place, it can hold an implanted embryo.
  • Boys having at least one normal testicle have the potential to be fertile.

Paternity is often hard to prove. Still, there are many children who grow to have their own children.

My baby has a Y chromosome. Does this mean he is a boy?

Not necessarily. The job of the Y chromosome (the SRY gene), is to direct a group of cells to form a testis. Even when testis form, they may not be masculinized. This may leave the outer organs looking like a girl's.

The gender of the baby can be hard to define. What is more important may be to ask yourself: what future will this child have if raised as a male, or as a female?

Once the problem is found, it will be easier to decide how to raise your baby.

Will my child have a hard time with sexual preferences or gender identity?

Females with congenital adrenal hyperplasia or complete androgen insensitivity tend to do well. They tend to understand their sexual identity and can function well.

For males, successful sexual relations can happen after the correction of even severe hypospadias. Ejaculation, though, may be weaker than normal. This is often the case when the penile urethra is rebuilt.

As for sexual expectations for infants with rare forms of DSD, we're not sure.

We have come to value the brain as a "sex organ." Research shows that testosterone may also affect the developing brain. It could affect gender identity. Medical experts realize that assigning gender is not always clear. Human sexuality is complex. The sexual choices of anyone, even with physically normal bodies, can be hard to predicted.